for young people with childhood heart disease.

Em's Story

Living with more than just a heart condition

Written by Em, 26 November 2015  |  Ventricular Septum Defect (VSD)  Patent Ductus Arteriosus (PDA) 

Hey guys, I just wanted to share my story so other heart kids know that even though they have a heart condition, they can do anything.

Remember, it just may take a long time but you will get there in the end. We all know that life is hard but you just have to keep going, and like Dory in finding Nemo said: “just keep swimming.’’

I was born with ventricular septum defect (VSD) and patent ductus arteriosus (PDA) and I had surgery at 11 weeks of age to help with my heart conditions.

I was also born with an intellectual disability which means maths and school things are really hard. I have also got a condition called severe hip dysplasia which mean that my hip was not covering its socket. Hips might sound like a small problem compared to the heart but I have had four major hip surgeries and three minor hip surgeries and have had to learn to walk four times - the last being seven weeks ago when I had a total hip replacement.

It has been very hard learning to walk four times. Each time I would be in wheelchair for six weeks, then walking frame, then from two crutches to one, then a walking stick, then none.  However, when things were tough, I would also think of all you guys and how strong you are.

The things I most want to get back to will take a long time – let’s face it trampolining is going to take forever.

You heart kids are so brave - so just keep pushing and you will all get there, it just may take some time

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brave, keep going, strong, trampolining

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Everything has beauty, but not everyone can see. Confucius